Nancy Frates

ALS Patient Advocate

After her 27-year-old son Peter was diagnosed with ALS in 2012, Frates dedicated her time to the ALS community by becoming an active advocate and thought activist. As a part of her ongoing efforts, Frates has appeared before Congress, at the White House and before a Food and Drug Administration panel regarding the ongoing challenges faced by the ALS community. Peter, along with the entire Frates family, inspired the viral ALS Ice Bucket Challenge, which raised over $220 million for the ALS Associates and its global partners. Frates continues to educate communities about the disease by speaking at many domestic and international events.

pharma-biotechhealthcare-services

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Speaking history

inSPire2026

22 September 2026 National Harbor, United States “The Impact of Patient Advocacy”

Topics this speaker covers

pharma-biotechhealthcare-services

Sectors

healthcare_medtech_pharma

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