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Healthcare & MedTech
23rd edition
50
Exhibitors
100
Attendees
An international congress focused on the regulatory, commercial, and clinical challenges of orphan drug development and rare disease treatments. Brings together pharmaceutical executives, biotechnology companies, patient advocacy groups, and global healthcare regulatory authorities.
Exhibitor mix: Organized flatly by tier including Headline Sponsors, Gold Sponsors, and Exhibition Stand partners on a dedicated event subpage.
Filter this event to your ICP.
50 exhibitors here. You probably care about 20–30. Tell us your ICP, we'll find them.
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Venue
Copthorne Tara Hotel London KensingtonHotel venue · 1 halls · ~400 people
A 4-star hotel in Kensington, London, featuring extensive event spaces including the Tara Ballroom, catering to meetings, conferences, and corporate events.
📍 Scarsdale Pl, London W8 5SR, UK
Operated by Millennium & Copthorne Hotels
Organizer
Facilitate LivePrivate · London, United Kingdom · Founded 2013
Organizer of high-level pharmaceutical and biotechnology conferences, specializing in rare diseases and orphan drugs.
Why people attend
Buyers attend to explore early access program partnerships, evaluate real-world evidence data extraction platforms, align with clinical trial recruitment providers, and establish strategic alliances with rare disease advocacy leaders.
Who attends
Exhibitor categories
Sample matches
Filtered to a Series-B SaaS ICP. Your filter will be different.
Sample Match A
example.com
"Strong ICP match: Series B, EU expansion, VP Engineering and CTO attending."
Sample Match B
example.io
"Mid-stage SaaS with active GTM motion; product-led growth signals align with ICP."
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████████.io
"████████████████████████████████████████."
Submit your ICP
to unlock all matches
████████ ██████
████████.io
"████████████████████████████████████████."
Submit your ICP
to unlock all matches
Speakers
42 speakers at Orphan Drugs & Rare Diseases Global Congress Europe
Head of Public Affairs and Market Access · Fondazione Telethon
"Progressing Rare disease diagnosis, care and treatment to improve health outcomes for patients with rare diseases"
Secretary General · EUCOPE
"Reflections on the EU’s future rare disease policy environment"
Also speaking at BIO Middle East 2026
President · Fondation Ipsen
"The DACMAR Advantage: This approach helps biotech companies position themselves for potential acquisition or public offering, with a focus on creating sustainable impact and preparing for long-term success"
Founder and CEO · Pulse infoframe Inc.
"Answering the million dollar question: Who really owns the data?"
Vice President and General Manager, DACH · Ultragenyx
"Early access to Orphan Drugs in Europe"
General Director EU Subsidiary & Founder · Theriva Biologics
"VCN-01 oncolytic adenovirus development in pediatric retinoblastoma"
SVP, Global Head of Rare Diseases · Ipsen
"Scientific journey from coal to diamond: myths and misperceptions in rare disease innovation"
Co-Founder, Member of Board & Scientific Advisor · Beacon for Rare Diseases
"Mesenchymal stem cells as a potential treatment for osteogenesis imperfecta"
Also speaking at International Security Conference & Exposition East
Translational Medicine and Targeted Therapies Unit · Necker Enfants Malades
"Drug repositioning in overgrowth syndrome and vascular malformations"
Also speaking at 56th Annual ESDR Meeting
Chief Medical Officer · Leadiant Biosciences
"Promises and Pitfalls of using Real World Data and Evidence (RWD/E) in Orphan Drug Development.**"
SVP, Head of Corporate Affairs · Kyowa Kirin International
"Chairpersons Welcome and Opening Remarks"
Joint Chief Executive · Tuberous Sclerosis Association
"Rare Diseases and Orphan Drugs: The importance of Patient engagement strategies to overcome challenges in Orphan Drug Development"
Chair · Motor Neurone Disease (MND) Association
"Reframing the patient in an age of precision medicine"
"Defining rare in the era of personalised medicine"
Also speaking at 27th Annual Pharmaceutical and Medical Device Ethics and Compliance Congress
Chair, BPSU, Scientific Committee · Bristol Royal Hospital for Children
"Rare diseases – not just the “what” but the “who”"
CEO and Chair of Trustees · AKU Society
"Challenges and opportunities for mRNA therapy for rare genetic diseases"
+ 26 more speakers at this event.
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